Tuesday, January 20, 2009

Five Years Old

BenAt5.jpg

Dear Ben -

You are turning five years old today.

You're a big kid now - at least, this is what I keep telling you.

Especially when you continue to insist on eating spaghetti one noodle at a time with your fingers or still ask me to carry your 43 pound self from one place to another.

But you have grown into an amazing big kid, and you do so many things now that I could not have imagined.

It seems like only a little while ago, we were worried about how your imaginative play skills were lagging behind your typical peers.

Now, you create elaborate and nuanced pretend worlds that leave your friends struggling to keep up with your rapid-fire imagination.

Most importantly, you are able to pretend you are 1) firing a laser and 2) falling into lava, which allows you to play with nearly any typical five-year-old boy.

Experts told us that you would probably have trouble showing empathy or strong emotions for others, and that we would have to teach you that over time.

But last week, your teacher described to me how big tears welled up in your eyes when she had to break it to the class that Dr. Martin Luther King - the subject of circle time that day - had died. You told her you wished that the class could gather around him and protect him, led by you with your magic sword.

You hadn't known until then that good people - not just witches and dragons - die, too. And you cried.

Last year I worried our living room would be forever taken over by your Thomas the Tank Engine railway and that you would develop few other interests.

As of today, you haven't played with your trains - really played obsessively - for months. It seems you'd rather act out a story with us, or make up a pretend adventure with action figures (which you now actually play with instead of stacking into various architectural forms.)

The clinical literature on Hyperlexia warned us that although your reading abilities would advance far beyond your years, you would never really comprehend what you read.

But it seems that each day, you are acting out and improvising on a plot line from a book, or generalizing vocabulary from a book to a real situation, showing us that you do often understand and comprehend.

(A side note: You have just become interested in the Magic Treehouse chapter book mega-series, and this week read 3 chapters of your new book aloud on your own, missing only the words "mirage" and "sarcophagus.")

I read that you're not supposed to develop what's called theory of mind, or the ability to anticipate and imagine what someone else might be thinking and adjust your behavior accordingly.

But when I came to pick you up early from school after a recent and unfortunate behavior incident, you saw the look on my face and immediately launched into a description of the event that can only be described as a fast-talking PR spin.

You ended the story with: "...and next time, I'll never do it again and I'll be a good friend and everyone will play together and laugh and laugh and laugh and...I want to kiss you, Mommy."

So much for not understanding what others might be thinking.

They told us that you would prefer to be alone and would have a hard time making friends.

You have friends. Friends who who light up and shout your name when you get to school, friends who have inside jokes with you, friends who hug you. And you hug back.

They told us that kids on the autism spectrum often seem emotionless and have a lack of facial expression.

But you are full of joy and silliness and enthusiasm and all of it shows on your face.

Now, just to be honest with you, it's not all sunshine and rainbows. We have challenges. I am often mystified and stymied as to how to help you cope with frustration and navigate the world.

And I know there are tough times ahead. The gap between you and your typical peers will keep looking bigger in some areas of life. I'm glad you don't realize yet that those boys at school are dismissing your interest in The Little Mermaid, but pretty soon you will.

We'll get through it somehow, because we've gotten this far.

And I still will shout from the rooftop that I love you exactly the way you are, and that the things that make you different are some of the things I love the most about you.

Welcome to five, buddy.

Love,
Mommy

10 comments:

tb said...

Yay, Ben! Yay, Mommy and Daddy!

goodfountain said...

Happy Birthday to Ben! Yay! We are so happy to have gotten to "know" you this past year and bear witness to what an amazing big kid you are growing into.

And what a great picture of you that is!

Diane said...

Hyperlexic, on the spectrum, off the spectrum, can't even find the spectrum, wonder if the word "diagnosis" is even applicable; we all face our challenges as parents. And we love them, love them. (Not the challenges, the kids. We just face the challenges and do the very best we can.)

Love to Ben on his special day!
Diane

jesswilson said...

I am so grateful to pixiemama for sending me your link .. this is incredibly beautiful.

What a marvelous gift this will be to your son someday. And moreover, what an awesome gift your love and acceptance and celebration of all of his incredible strengths is NOW.

Happy birthday, Ben.

jaki said...

Ben's effervesence(I'm a terrible speller-something about mixed dominants!)amd smiles and hugs and kisses and all of his growth and development are a credit to you two as parents! Ben is MORE because of your love for him!
So Yay Ben! and Yay Chris and Crista!!

Anonymous said...

Happy Birthday, Ben! You are a special gift. You are a blessing in my life. Whenever I see a picture of you, a smile comes to my face. Your spirit is so alive with wonder and joy. Love and Hugs, Julie

Christa, thanks for sharing and allowing us to see Ben through your heart and eyes.

Susan said...

Christa, what a beautiful post. I'm all teary. And so proud of Ben and all he's accomplished. Happy Birthday!

Anonymous said...

a profound and beautiful tribute to all the hard work that has gone into these past few years.......
HOORAY for Ben
HOORAYfor Chris and Christa
HOORAYfor all who have brought Bent o who he is today.
your letter is awesome and to be cherished always.....
with love, pride and constant awe.....
eileen

Anonymous said...

What a beautiful letter. Happy belated birthday, Ben!

drama mama said...

I laugh now in the face of Things They Told Me.

Go Ben!

And remember.

I want you in my class.